So after what seemed to be a lifetime of waiting (10 long days), we finally spoke with the neurosurgeon regarding the results of Luke's recent tests at Cedar Sinai. During both the Mylogram as well as the CT scan, the doctors were not able to identify a CSF leak. That doesn't mean there isn't one, just simply that they didn't see one. The most notable discovery came when they initiated the lumbar puncture and noticed that his CSF pressure was virtually zero. This indicates that there is very little fluid where it needs to be and certainly is cause for concern. This could indicate a leak, or low CSF production or many other possible factors. For now, this is all we know.
So our next plan is to return to Cedars for a two-level blood patch (upper & lower spine). He has already had multiple blood patches throughout this process, and none of them have been effective in stopping the headaches. His new Dr. feels that this is the next logical step in to take, and we hope that this team at Cedars can bring some well needed relief from the chronic pain. We are working to get this scheduled asap and will continue to pray for a quick resolution to this ongoing issue.
We want to express sincerest gratitude to every one for the continued love, support and prayers.
More to follow........
The Browns
PS-Here is the description of a blood patch:
- An epidural blood patch is a surgical procedure that uses autologous blood in order to close one or many holes in the dura mater of the spinal cord, usually as a result of a previous lumbar puncture. The procedure can be used to relieve post dural puncture headaches caused by lumbar puncture (spinal tap).
Luke & mom in front of a local Christmas Light explosion
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